Additional Resources

Medline Plus: Information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations.

• Genetic Testing
• Genetic Counseling

Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions.

• Genetic Testing

National Cancer Institute (NCI):

Accurate, up-to-date, comprehensive cancer information from the US government's principal agency for cancer research.

• Cancer Genetics Overview PDQ®
  Provides a comprehensive look at cancer genetics for healthcare professionals with an emphasis on the evidence.
• Elements of Cancer Genetics Risk Assessment and Counseling
  Describes current approaches to assessing and counseling people about their chances of having an inherited susceptibility to cancer.
• Understanding Gene Testing
  A slide presentation focusing on understanding gene testing
• Cancer Genetics Network: Epidemiology and Cancer Research
  The Epidemiology and Genetics Research Program (EGRP) manages a comprehensive program of grant-supported, population-based research that brings to bear the expertise of scientists to increase our understanding of cancer etiology and prevention.

American Cancer Society (ACS):

The ACS is the nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

• Oncogenes and Tumor Suppressor Genes
  The American Cancer Society provides a look at oncogenes, tumor suppressor genes, and the role of genes in cancer prevention and treatment.
• Genetic Testing: What You Need to Know

American Society of Human Genetics (ASHG)
ASHG is a professional membership organization for human geneticists. Membership is comprised of researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, nurses, and others involved in or with a special interest in human genetics. Information on genetics, meetings, and the online Journal of Human Genetics is provided here.

The Atlas of Genetics and Cytogenetics in Oncology and Haematology
The Atlas of Genetics and Cytogenetics in Oncology and Haematology is a "peer reviewed, online journal and database devoted to genes, cytogenetics, and clinical entities in cancer and cancer-prone diseases." This site has extensive information on cancer genomics and research.

Centers for Disease Control and Prevention (CDC)
The Office of Genomics and Disease Prevention (OGDP) at CDC provides information about human genomic discoveries and how they can be used to improve health and prevent disease.

Gene Tests
Gene Tests, funded by the National Institutes of Health, provides medical genetics information and resources developed specifically for healthcare providers. Authoritative information on genetic testing and its use in diagnosis, management, and genetic counseling is included.

Genetic Alliance
The Genetic Alliance is an international coalition comprised of more than 600 advocacy, research, and healthcare organizations that represent millions of individuals with genetic conditions and their interests. This organization focuses on and provides resources for advocacy and education.

Human Genome Project Information
The website of the Human Genome Project (HGP) provides everything from history to ongoing work conducted around this 13-year project to develop a DNA map. Completed in 2003, the HGP, supported by the US Department of Energy and the National Institutes of Health, was designed to identify and determine sequences the genes in human DNA and address ethical, legal and social issues that arose from the project. Information on educational, research, and ethics information on genomics, plus much more, can be found here.

International Society of Nurses in Genetics (ISONG)
ISONG is a nursing specialty organization dedicated to fostering the scientific and professional growth of nurses in human genetics. This website provides information geared toward nurses on education, research (including funding opportunities), and ethical issues related to genetics