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Genetics Clinical Resource Area - Ethics
The American Society of Human Genetics
This report, developed by boards of directors of the ASHG and the American College of Medical Genetics, focuses on the impact of potential benefits and harms on decisions about testing, the family's involvement in decision making, considerations for future research, benefits and harms of genetic testing in children and medical, psychological, and reproductive issues.
Statement on Informed Consent for Genetic Research
Document designed to protect the rights and welfare of those who participate in genetic research as subjects.
Centers for Disease Control and Prevention (CDC)
The CDC offers a variety of resources and commentary pertaining to discoveries of genetic variants, related disease outcomes, and the complex social, legal, and ethical issues surrounding genetic discoveries.
Genetic Alliance
This resource addresses the Genetic Information Nondiscrimination Act, which prohibits discrimination with regard to healthcare insurance and employment. Additional health policy and advocacy resources are offered.
Human Genome Project Information
Issues specific to ethical, legal, and social implications are addressed on the Human Genome Project site, including privacy and confidentiality of genetic information, reproductive issues, clinical issues, and fairness in the use of genetic information.
The National Human Genome Research Institute
The National Human Genome Research Institute is a gateway to information on issues surrounding genetics, including the following: