Hematology Patient Resource Area: Hemophilia

This inherited bleeding disorder is caused by a deficiency of the clotting factors within the blood. There are two types of Hemophilia; type A, where clotting factor VIII is low or missing & type B where clotting factor IX is low or missing. Type A is much more common and accounts for approximately 80% of all diagnosis. There are approximately 20,000 cases in the United States . The condition is primarily a condition of those of the Eastern European Jewish ancestry. Researchers are working on developing new and advanced treatment options beyond routine transfusion of blood products.

National Heart, Lung, and Blood Institute
This is a division of the U.S. Department of Health & Human Services branch of the federal government. The site is maintained by the National Institute of Health. This is a resource for information on detection, symptoms, diagnosis and treatment of the disease.

Merck Manual
This is a website which provides information regarding causes, types, symptoms, disease complications, diagnosis and treatment. The website is informative for individuals from within health care, patient caregivers and patients alike.

World Federation of Hemophilia
This is an organization dedicated to disseminating information regarding the disease of Hemophilia and Von Willebrand Disease. The website contains information regarding the disease, diagnosis, treatment and care of the patient.