Expressive writing/journaling is the art of putting thoughts and feelings on paper. Writing about negative emotional experiences may improve physical and psychological health, and writing about deep feeling regarding personal stressors can enhance well-being and health. Expressive writing as a form of emotional disclosure has been examined in fatigue and depression and may have relevance for pain, sleep-wake disturbances, anxiety, and caregiver strain and burden. Individuals may be counseled to write specifically about thoughts and feelings, or some other aspect of their experience.
Duggleby, W., Williams, A., Holstlander, L., Cooper, D., Ghosh, S., Hallstrom, L. K., . . . Hampton, M. (2013). Evaluation of the living with hope program for rural women caregivers of persons with advanced cancer. BMC Palliative Care, 12(1), 36.
To investigate the results of a Living With Hope Program on rural female caregivers‘ self-efficacy, hope, quality of life, and loss and grief when caring for persons with advanced cancer
Components of the Living With Hope Program included caregiver viewing of a Living With Hope video and journaling centered on “Stories of the Present” over a two-week period. Journaling focused on caregiving challenges and experiences supportive of hope in the caregiving experience. Measures assessing caregiver demographic data, hope, self-efficacy, quality of life, grief, and journaling time were collected at baseline, one week, two weeks, and 3, 6, and 12 months. Trained RNs collected baseline and one- and two-week data in caregiver homes and then by telephone at 3, 6, and 12 months. Convenience sampling produced an initial N of 36 but because of attrition based on uncontrolled factors dropped to 22 by the 12-month measurement time.
HHI scores at day 7 and 14 were significantly higher than baseline values (p = 0.013), and GSES scores were significantly higher at all data points compared to baseline values (p < 0.04). SF-12v2 physical summary scores were significantly lower at 12 months than at baseline (p = 0.04), but instrument mental scores at 3 and 12 months were significantly higher than at baseline (p < 0.03). A positive correlation between GSES and HHI scores (p < 0.001) and a negative correlation between NDRGEI and HHI scores (p = .0.01) was found. HHI and NDRGEI scores significantly predicted caregiver mental health summary scores (p = 0.01 or less) and similar physical health scores (p < 0.04). All caregivers completed the Living With Hope intervention with a mean 4.18 (SD = 4.07) journal entries per week and an average journal composition time of 9.12 minutes (SD = 8.89 minutes). Qualitative analysis data supported the value of journaling, social support, and faith and spirituality in responding to caregiver challenges with accessing care, financial issues, and caregiver health.
Study findings suggest that the Living With Hope Program may increase hope in rural female caregivers of people with advanced cancer who are receiving palliative care services. The study's small sample size, convenience sample, limited journaling exercise, and inherent threats to internal validity (e.g., history, selection, maturation) due to study design support further studies of the Living With Hope Program as an evidence-based psychosocial intervention for caregivers of patients with advanced cancer.
Clinicians benefit from examining interventions, such as the Living With Hope Program, that improve caregiver hope via increasing self-efficacy and minimizing feelings of loss and grief with advanced cancer family member care. Study results that rural caregivers experience poorer physical and mental health than the general population also support clinician attention to caregiver health issues during care encounters.
Harvey-Knowles, J., Sanders, E., Ko, L., Manusov, V., & Yi, J. (2017). The impact of written emotional disclosure on cancer caregivers' perceptions of burden, stress, and depression: A randomized controlled trial. Health Communication, 33, 824–832.
To investigate whether emotional disclosure improved the well-being of caregivers who care for a spouse who experienced HSCT within the past 1 to 3 years.
Two forms of expressive writing (expressive disclosure [ED] and benefit finding [BF]) versus control (time management). Participants in the ED (prompted to discuss undisclosed thoughts/feelings related to the cancer experience) and BF (prompted to discuss any positive outcomes to the cancer experience) were emailed the same prompts three times, seven days apart. Control group received three slightly different prompts, seven days apart; the prompts asked controls to focus on activities done in past week, past 24 hours, and planned activities for the upcoming week.
Randomized control trial with two intervention groups and one control.
Burden: Zarit Caregiver Burden Scale; Stress: Perceived Stress Scale (PSS); Depression: the Patient Health Questionnaire (PHQ)
Burden: Writing (regardless of writing condition) significantly decreased caregivers burden scores (p < 0.01) at posttest (M = 23.19), compared to pretest (M = 25.44). No significant main effect to intervention.
Stress: No significant reduction in caregivers stress; however, those who had higher than average baseline stress in the control group had significant reduction in their stress as compared to those in the intervention groups.
Depression: A significant main effect: a 0.24 greater reduction in post-test depression among those in the intervention than those in the control. A significant interaction effect, those with higher than average depression at baseline has a significant benefit (2.37 point reduction) from assignment to treatment condition (p < 0.05) as compared to control (0.12 point increase in depression).
Expressive writing appears to be beneficial, regardless of type, to caregivers of survivors of HSCT.
ED and BF writing may decrease caregivers depression. Writing, regardless of type, may improve burden and stress among caregivers of HSCT survivors. This is a feasible and relatively simple intervention to help caregivers.