Article

Storytelling Intervention for Patients With Cancer: Part 1—Development and Implementation

Bronwynne C. Evans

Neva L. Crogan

Robert Bendel

complementary and alternative therapies, quality of life
ONF 2008, 35(2), 257-264. DOI: 10.1188/08.ONF.257-264

Purpose/Objectives: To develop a nurse-led storytelling intervention for patients with cancer and implement the intervention using trained oncology nurses.

Design: Descriptive pilot project using qualitative methods to assess implementation of an intervention tool kit, with investigators blinded to control and intervention group membership.

Setting: Local regional medical center in the Pacific Northwest region of the United States.

Sample: A convenience sample of 11 patients with various cancer diagnoses was used for tool kit generation. Intervention and control groups were then formed and used to study tool kit implementation.

Methods: Participant exit interviews and facilitator debriefing questionnaires assessed the ability of a nurse facilitator to use a group storytelling intervention tool kit. Data from control and intervention groups were analyzed and compared with qualitative procedures.

Main Research Variables: A nurse-led storytelling intervention.

Findings: Analysis of interviews and questionnaires revealed implementation of storytelling tool kit principles and differences between storytelling and control groups in three patterns: finding a soft place to fall, understanding the cancer experience, and figuring out how (if) to get through it.

Conclusions: Techniques contained in the tool kit were implemented and deemed clinically useful by oncology nurses.

Implications for Nursing: Given the small testing groups, pilot project results must be interpreted with caution, but with additional research and instructional development, the tool kit could be useful to nurses in a variety of settings and locales.

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    References

    Abell, N. (1991). The Index of Clinical Stress: A brief measure of subjective stress for practice and research. Social Work Research and Abstracts, 27(2), 12-15.
    Boykin, A., & Schoenhofer, S.O. (1991). Story as link between nursing practice, ontology, epistemology. Image, 23(4), 245-248.
    Burish, T. (2000). The role of behavioral and psychosocial science in reducing cancer morbidity and mortality. Oncologist, 5(3), 263-266.
    Carson, A.M., & Fairbairn, G.J. (2002). The whole story: Toward an ethical research methodology. Nurse Researcher, 10(1), 15-29.
    Caserta, M.S., & Lund, D.A. (1993). Intrapersonal resources and effectiveness of self-help groups for bereaved older adults. Gerontologist, 33(5), 619-629.
    Clarke, A., Hanson, E.J., & Ross, H. (2003). Seeing the person behind the patient: Enhancing the care of older people using a biographical approach. Journal of Clinical Nursing, 12(5), 697-706.
    Cohen, M.Z., Haberman, M.R., & Steeves, R.H. (1994). The meaning of oncology nursing: A phenomenological investigation. Oncology Nursing Forum, 21(8, Suppl.), 5-8.
    Cohen, M.Z., Kahn, D.L., & Steeves, R.H. (1998). Beyond body image: The experience of breast cancer. Oncology Nursing Forum, 25(5), 835-841.
    Cunningham, A.J. (2000). Adjuvant psychological therapy for cancer patients: Putting it on the same footing as adjunctive medical therapies. Psycho-Oncology, 9(5), 367-371.
    Diekelmann, N. (1991). The emancipatory power of the narrative. In R. Schaperow (Ed.), Curriculum revolution: Community building and activism (pp. 41-62). New York: National League for Nursing.
    Diener, E., Emmons, R.A., Larsen, R.J., & Griffin, S. (1985). The Satisfaction With Life Scale. Journal of Personality Assessment, 49(1), 71-75.
    Emblen, J., & Pesut, B. (2001). Strengthening transcendent meaning: A model for the spiritual nursing care of patients experiencing suffering. Journal of Holistic Nursing, 19(1), 42-56.
    Errante, A. (2000). But sometimes you're not part of the story: Oral histories and ways of remembering and telling. Educational Researcher, 29(2), 16-27.
    Frank, A. (1997). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
    Kahn, D.L., & Steeves, R.H. (1988). Caring and practice: Construction of the nurse's world. Scholarly Inquiry for Nursing Practice, 2(3), 201-221.
    Kahn, D.L., & Steeves, R.H. (1994). Witnesses to suffering: Nursing knowledge, voice, and vision. Nursing Outlook, 42(6), 260-264.
    Kahn, D.L., & Steeves, R.H. (1995). The significance of suffering in cancer care. Seminars in Oncology Nursing, 11(1), 9-16.
    Kellner, R. (1986). The Brief Depression Rating Scale. In N. Sartorius & T. Ban (Eds.), Assessment of depression (pp. 179-183). New York: Springer-Verlag.
    Kilpatrick, F.P., & Cantril, H. (1960). Self-anchoring scaling: A measure of individual's unique reality worlds. Journal of Individual Psychology, 16(2), 158-173.
    Kingsley, E.P. (2001). Welcome to Holland. In S.D. Klein and K. Schive (Eds.), You will dream new dreams: Inspiring personal stories by parents of children with disabilities (pp. 216-217). New York: Kensington Books.
    Kirkpatrick, M.K., Ford, S., & Castelloe, B.P. (1997). Storytelling: An approach to client-centered care. Nurse Educator, 22(2), 38-40.
    Koithan, M. (1994). The seeing self: Photography and storytelling as a health promotion methodology. In P. Chinn & J. Watson (Eds.), Art and aesthetics in nursing (pp. 247-261). New York: National League for Nursing.
    Leight, S.B. (2002). Starry night: Using story to inform aesthetic knowing in women's health nursing. Journal of Advanced Nursing, 37(1), 108-114.
    Liehr, P.R., & Smith, M.J. (2000). Using story theory to guide nursing practice. International Journal for Human Caring, 4(2), 13-18.
    Melzack, R. (1975). The McGill Pain Questionnaire: Major properties and scoring methods. Pain, 1(3), 277-299.
    Miles, M., & Huberman, A. (1994). Qualitative data analysis: An expanded sourcebook. Thousand Oaks, CA: Sage.
    Moules, N.J., & Streitberger, S. (1997). Stories of suffering, stories of strength: Narrative influences in family nursing. Journal of Family Nursing, 3(4), 365-367.
    Quinn, J.F., Smith, M., Ritenbaugh, C., Swanson, K., & Watson, M.J. (2003). Research guidelines for assessing the impact of the healing relationship in clinical nursing. Alternative Therapies in Health and Medicine, 9(3, Suppl.), A65-A79.
    Sandelowski, M. (1994). We are the stories we tell: Narrative knowing in nursing practice. Journal of Holistic Nursing, 12(1), 23-33.
    Severtsen, B.M., & Evans, B.C. (2000). Education for caring practice. Nursing and Health Care Perspectives, 21(4), 172-177.
    Smith, M.J., & Liehr, P. (1999). Attentively Embracing Story: A middle-range theory with practice and research implications. Scholarly Inquiry for Nursing Practice, 13(3), 187-210.
    Smith, M.J., & Liehr, P. (2003). The theory of Attentively Embracing Story. In M. Smith & P. Liehr (Eds.), Middle-range theory for nursing (pp. 167-187). New York: Springer.
    Spiegel, D., Stroud, P., & Fyfe, A. (1998). Complementary medicine. Western Journal of Medicine, 168(4), 241-247.
    Steeves, R.H. (1992). Patients who have undergone bone marrow transplantation: Their quest for meaning. Oncology Nursing Forum, 19(6), 899-905.
    Steeves, R.H. (1996). Loss, grief, and the search for meaning. Oncology Nursing Forum, 23(6), 897-903.
    Ten Kroode, H.F. (1998). Active listening to cancer patients' stories. Netherlands Journal of Medicine, 53(2), 47-52.
    Utley, R. (1999). The evolving meaning of cancer for long-term survivors of breast cancer. Oncology Nursing Forum, 26(9), 1519-1523.
    Vogt, W. (1998). Dictionary of statistics and methodology (2nd ed.). Thousand Oaks, CA: Sage.
    Watson, J. (1988). Nursing: Human science and human care. New York: National League for Nursing.
    Watson, J. (2002). Intentionality and caring-healing consciousness: A practice of transpersonal nursing. Holistic Nursing Practice, 16(4), 12-19.
    Watson, J. (2003). Love and caring: Ethics of face and hand—An invitation to return to the heart and souls of nursing and our deep humanity. Nursing Administration Quarterly, 27(3), 197-202.
    Wise, C., Plowfield, L.A., Kahn, D.L., & Steeves, R.H. (1992). Using a grid for interpreting and presenting qualitative data. Western Journal of Nursing Research, 14(6), 796-800.