References
Andrews, M. M., & Boyle, J. S. (2003). Transcultural concepts in nursing care (4th ed.). Philadelphia, PA: Lippincott Williams and Wilkins.
Badger, J. M. (2005). Factors that enable or complicate end-of-life transitions in critical care. American Journal of Critical Care, 14, 513-521.
Baggs, J. G., Norton, S. A., Schmitt, M. H., Dombeck, M. T., Sellers, C. R., & Quinn, J. R. (2007). Intensive care unit cultures and end-of-life decision making. Journal of Critical Care, 22, 159-168. doi: 10.1016/j.jcrc.2006.09.008
Barrera, M., Boyd-Pringle, L. A., Sumbler, K., & Saunders, F. (2000). Quality of life and behavioral adjustment after pediatric bone marrow transplantation. Bone Marrow Transplantation, 26, 427-435.
Braun, U. K., Beyth, R. J., Ford, M. E., & McCullough, L. B. (2008). Voices of African American, Caucasian, and Hispanic surrogates in the burdens of end-of-life decision making. Journal of General Internal Medicine, 23, 267-274. doi: 10.1007/s11606-007-0487-7
Carnevale, F. A. (2007). The birth of tragedy in pediatrics: A phronetic conception of bioethics. Nursing Ethics, 14, 571-582.
Chinn, P. L., & Kramer, M. K. (2004). Integrated knowledge development in nursing (6th ed.). St. Louis, MO: Mosby.
Christ, G., & Blacker, S. (2005). Enhancing our understanding of the impact of transition to end-of-life caregiving. Journal of Palliative Medicine, 8, 622. doi: 10.1089/jpm.2005.8.622
Clayton, J. M., Butow, P. N., & Tattersall, M. H. (2005). The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer, 103, 1957-1964.
Crotty, M. (2005). The foundations of social research. London, UK: Sage.
Davies, B., Deveau, E., deVeber, B., Howell, D., Martinson, I., Papadatou, D., … Stevens, M. (1998). Experiences of mothers in five countries whose child died of cancer. Cancer Nursing, 21, 301-311.
Davies, B., Reimer, J. C., & Martens, N. (1990). Families in supportive care—Part I. The transition of fading away: The nature of transition. Journal of Palliative Care, 6(3), 12-20.
Dickey, S. B. (2007). Helping children and adolescents become competent to participate in healthcare decisions. Pennsylvania Nurse, 62, 16-17.
Drew, D., Goodenough, B., Maurice, L., Foreman, T., & Willis, L. (2005). Parental grieving after a child dies from cancer. International Journal of Palliative Nursing, 11, 266-273.
Fawcett, J. (1989). Analysis and evaluation of conceptual models of nursing (2nd ed.). Philadelphia, PA: F. A. Davis.
Goldberg, B. (1998). Connection: An exploration of spirituality in nursing care. Journal of Advanced Nursing, 27, 836-842.
Gorman, T. E., Ahern, S. P., Wiseman, J., & Skrobik, Y. (2005). Residents' end-of-life decision making with adult hospitalized patients: A review of the literature. Academic Medicine, 80, 622-633.
Herth, K. (1993). Hope in the family caregiver of terminally ill people. Journal of Advanced Nursing, 18, 538-548.
Heyse-Moore, L. H. (1996). On spiritual pain in the dying. Mortality, 1, 297-315.
Hinds, P. S., Birenbaum, L. K., Clarke-Steffen, L., Quargnenti, A., Kreissman, S., Kazak, A., … Wilimas, J. (1996). Coming to terms. Nursing Research, 45, 148-153.
Hinds, P. S., Drew, D., Oakes, L. L., Fouladi, M., Spunt, S. L., Church, C., … Furman, W. L. (2005). End-of-life care preferences of pediatric patients with cancer. Journal of Clinical Oncology, 23, 9146-9154.
Hinds, P. S., Oakes, L., Furman, W., Foppiano, P., Olson, M. S., Quargnenti, A., … Strong, C. (1997). Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncology Nursing Forum, 24, 1523-1528.
Hinds, P. S., Oakes, L., Furman, W., Quargnenti, A., Olson, M. S., Foppiano, P., & Srivastava, D. K. (2001). End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology. Cancer Nursing, 24, 122-136.
Hinds, P. S., Oakes, L., Quargnenti, A., Furman, W., Bowman, L., Gilger, E., … Drew, D. (2000). An international feasibility study of parental decision making in pediatric oncology. Oncology Nursing Forum, 27, 1233-1243.
Hinds, P. S., Schum, L., Baker, J. N., & Wolfe, J. (2005). Key factors affecting dying children and their families. Journal of Palliative Medicine, 8(1, Suppl.), S70-S78. doi: 10.1089/jpm.2005.8.s-70
Kirschbaum, M. S. (1996). Life support decisions for children: What do parents value? Advances in Nursing Science, 19, 51-71.
Kruse, B. G. (2004). The meaning of letting go. Journal of Hospice and Palliative Nursing, 6, 215-222.
Kruse, B. G., Ruder, S., & Martin, L. (2007). Spirituality and coping at the end of life. Journal of Hospice and Palliative Nursing, 9, 296-304.
Kylma, J., & Vehvilainen-Julkunen, K. (1997). Hope in nursing research. Journal of Advanced Nursing, 25, 364-371.
Linnard-Palmer, L., & Kools, S. (2005). Parents' refusal of medical treatment for cultural or religious beliefs. Journal of Pediatric Oncology Nursing, 22, 48-57. doi: 10.1177/1043454204270263
London, M. R., & Lundstedt, J. (2006). Families speak about inpatient end-of-life care. Journal of Nursing Care Quality, 22, 152-158.
Lowe, V. (1990). Alfred North Whitehead: The man and his work: 1910-1947 (Vol. 2). Baltimore, MD: Johns Hopkins University Press.
Mack, J. W., Wolfe, J., Grier, H. E., Cleary, P. D., & Weeks, J. C. (2006). Communication about prognosis between parents and physicians of children with cancer: Parent preferences and the impact of prognostic information. Journal of Clinical Oncology, 24, 5265-5270. doi: 10.1200/JCO.2006.06.5326
Meert, K. L., Thurston, C. S., & Sarnaik, A. P. (2000). End-of-life decision making and satisfaction with care: Parental perspectives. Pediatric Critical Care Medicine, 1, 179-185.
Meleis, A. I. (2007). Theoretical nursing: Development and progress (4th ed.). Philadelphia, PA: Lippincott Williams and Wilkins.
Meyer, E. C., Burns, J. P., Griffith, J. L., & Truog, R. D. (2002). Parental perspectives on end-of-life care in the pediatric intensive care unit. Critical Care Medicine, 30, 226-231.
Oppenheim, D., Valteau-Couanet, D., Vasselon, S., & Hartmann, O. (2002). How do parents perceive high-dose chemotherapy and autologous stem cell transplantation for their children? Bone Marrow Transplantation, 30, 35-39. doi: 10.1038/sj.bmt.1703587
Provoost, V., Cools, F., Deconinck, P., Ramet, J., Deschepper, R., Bilsen, J., … Deliens, L. (2006). Consultation of parents in actual end-of-life decision-making in neonates and infants. European Journal of Pediatrics, 165, 859-866 doi: 10.1007/s00431-006-0190-4.
Pyke-Grimm, K. A., Degner, L., Small, A., & Mueller, B. (1999). Preferences for participation in treatment decision making and information needs of parents of children with cancer: A pilot study. Journal of Pediatric Oncology Nursing, 16, 13-24.
Sharman, M., Meert, K. L., & Sarnaik, A. P. (2005). What influences parents' decisions to limit or withdraw life support? Pediatric Critical Care Medicine, 6, 513-518.
Steele, R., & Davies, B. (2006). Impact on parents when a child has a progressive, life-threatening illness. International Journal of Palliative Nursing, 12, 576-585.
Stevens, P. E., & Pletsch, P. K. (2002). Ethical issues of informed consent. Cancer Nursing, 25, 81-87.
Stewart, J. L., Pyke-Grimm, K. A., & Kelly, K. P. (2005). Parental treatment decision making in pediatric oncology. Seminars in Oncology Nursing, 21, 89-97.
Tanyi, R. A. (2002). Towards clarification of the meaning of spirituality. Journal of Advanced Nursing, 39, 500-509.
Teixeira, M. E. (2008). Self-transcendence: A concept analysis for nursing praxis. Holistic Nursing Practice, 22, 25-31.
Tejada-Reyes, I. (2002). Making death a meaningful transition. Clinical Journal of Oncology Nursing, 6, 173-174.
Tomlinson, D., Capra, M., Gammon, J., Volpe, J., Barrera, M., Hinds, P. S., … Sung, L. (2006). Parental decision making in pediatric cancer end-of-life care. European Journal of Oncology Nursing, 10, 198-206. doi: 10.1016/j.ejon.2005.11.003
Truog, R. D., Meyer, E. C., & Burns, J. P. (2006). Toward interventions to improve end-of-life care in the pediatric intensive care unit. Critical Care Medicine, 34(11, Suppl.), S373-S379. doi: 10.1097/01.CCM.0000237043.70264.87
Waldrop, D. P., Kramer, B. J., Skretny, J. A., Milch, R. A., & Finn, W. (2005). Final transitions. Journal of Palliative Medicine, 8, 623-638. doi: 10.1089/jpm.2005.8.623
Walker, L. O., & Avant, K. C. (2005). Strategies for theory construction in nursing (4th ed.). Upper Saddle River, NJ: Pearson Prentice Hall.
Wayman, L. M., & Gaydos, H. L. B. (2005). Self-transcending through suffering. Journal of Hospice and Palliative Nursing, 7, 263-270.
Whitehead, A. N. (1978). Process and reality: An essay in cosmology (D. R. Griffin & D. W. Sherburne, Eds.). New York, NY: Free Press.