Adams, E., Boulton, M., & Watson, E. (2009). The information needs of partners and family members of cancer patients: A systematic literature review. Patient Education and Counseling, 77, 179-186.
Alderman, A.K., Hawley, S.T., Janz, N.K., Mujahid, M.S., Morrow, M., & Hamilton, A.S., … Katz, S.J. (2009). Racial and ethnic disparities in the use of postmastectomy breast reconstruction: Results from a population-based study. Journal of Clinical Oncology, 27, 5325-5330. doi:10.1200/JCO.2009.22.2455
Anema, M.G., & Brown, B.E. (1995). Increasing survey responses using the total design method. Journal of Continuing Education in Nursing, 26, 109-114.
Arora, N.K., Johnson, P., Gustafson, D.H., McTavish, F., Hawkins, R.P., & Pingree, S. (2002). Barriers to information access, perceived health competence, and psychosocial health outcomes: Test of a mediation model in a breast cancer sample. Patient Education and Counseling, 47, 37-46. doi:10.1016/S0738-3991(01)00170-7
Aziz, N.M., & Rowland, J.H. (2002). Cancer survivorship research among ethnic minority and medically underserved groups. Oncology Nursing Forum, 29, 789-801. doi:10.1188/02.ONF.789-801
Banning, M. (2011). Black women and breast health: A review of the literature. European Journal of Oncology Nursing, 15, 16-22.
Betancourt, J.R., Green, A.R., Carrillo, J.E., & Park E.R. (2005). Cultural competence and health care disparities: Key perspectives and trends. Health Affairs, 24, 499-505. doi:10.1377/hlthaff.24.2.499
Brehaut, J.C., O'Connor, A.M., Wood, T.J., Hack, T.F., Siminoff, L., Gordon, E., & Feldman-Stewart, D. (2003). Validation of a decision regret scale. Medical Decision Making, 23, 281-292.
Cabassa, L.J. (2003). Measuring acculturation: Where we are and where we need to go. Hispanic Journal of Behavioral Sciences, 25, 127-146. doi:10.1177/0739986303025002001
Cochrane, B.B., Lewis, F.M., & Griffith, K.A. (2011). Exploring a diffusion of benefit: Does a woman with breast cancer derive benefit from an intervention delivered to her partner? Oncology Nursing Forum, 38, 207-214. doi:10.1188/11.ONF.207-214
Conway, J., Johnson, B., Edgman-Levitan, S., Schlucter, J., Ford, D., Sodomka, P., & Simmons, L. (2006). Partnering with patients and families to design a patient- and family-centered health care system: A roadmap for the future. Retrieved from http://www.ipfcc.org/pdf/Roadmap.pdf
Cuellar, I., Arnold, B., & Maldonado, R. (1995). Acculturation rating scale for Mexican Americans-II: A revision of the original ARSMA scale. Hispanic Journal of Behavioral Sciences, 17, 275-304.
Duric, V.M., Butow, P.N., Sharpe, L., Heritier, S., Boyle, F., Beith, J., … Stockler, M.R. (2008). Comparing patients' and their partners' preferences for adjuvant chemotherapy in early breast cancer. Breast Cancer Research and Treatment, 72, 239-245.
Edgman-Levitan, S. (2003). Healing partnerships: The importance of including family and friends. In S. Frampton, L. Gilpin, & P. Charmel (Eds.), Putting patients first (pp. 51-69). San Francisco, CA: Jossey-Bass.
Epstein, R.M., & Street, R.L. (2011). The values and value of patient-centered care. Annals of Family Medicine, 9, 100-103. doi:10.1370/afm.1239
Fagerlin, A., Lakhani, I., Lantz, P.M., Janz, N.K., Morrow, M., & Schwartz, K., … Katz, S.J. (2006). An informed decision? Breast cancer patients and their knowledge about treatment. Patient Education and Counseling, 64, 303-312. doi:10.1016/j.pec.2006.03.010
Frosch, D.L., & Elwyn, G. (2011). I believe, therefore I do. Journal of General Internal Medicine, 26, 2-4. doi:10.1007/s11606-010-1560-1
Gallia, K.S., & Pines, E.W. (2009). Narrative identity and spirituality of African American church women surviving breast cancer survivors. Journal of Cultural Diversity, 16, 50-55.
Gilbar, R., & Gilbar, O. (2009). The medical decision-making process and the family: The case of breast cancer patients and their husbands. Bioethics, 23, 183-192. doi:10.1111/j.1467-8519.2008.00650.x
Gilovich, T., & Medvec, V.H. (1995). The experience of regret: What, when, and why. Psychological Review, 102, 379-395. doi:10.1037/0033-295X.102.2.379
Hamilton, A.S., Hofer, T.P., Hawley, S.T., Morrell, D., Leventhal, M., & Deapen, D., … Katz, S.J. (2009). Latinas and breast cancer outcomes: Population-based sampling, ethnic identity, and acculturation assessment. Cancer Epidemiology, Biomarkers and Prevention, 18, 2022-2029. doi:10.1158/1055-9965.EPI-09-0238
Hawley, S.T., Fagerlin, A., Janz, N.K., & Katz, S.J. (2008). Racial/ethnic disparities in knowledge about risks and benefits of breast cancer treatment: Does it matter where you go? Health Services Research, 43, 1366-1387. doi:10.1111/j.1475-6773.2008.00843.x
Hawley, S.T., Griggs, J.J., Hamilton, A.S., Graff, J.J., Janz, N.K., Morrow, M., … Katz, S.J. (2009). Decision involvement and receipt of mastectomy among racially and ethnically diverse breast cancer patients. Journal of the National Cancer Institute, 101, 1337-1347. doi:10.1093/jnci/djp271
Hawley, S.T., Janz, N.K., Hamilton, A., Griggs, J.J., Aldeman, A.K., Mujahid, M., & Katz, S.J. (2008). Latina patient perspectives about informed treatment decision making for breast cancer. Patient Education and Counseling, 73, 363-370. doi:10.1016/j.pec.2008.07.036
Hilton, B.A., Crawford, J.A., & Tarko, M.A. (2000). Men's perspectives on individual and family coping with their wives' breast cancer and chemotherapy. Western Journal of Nursing Research, 22, 438-459. doi:10.1177/019394590002200405
Institute of Medicine. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, DC: National Academies Press.
Janz, N.K., Mujahid, M.S., Hawley, S.T., Griggs, J.J., Hamilton, A.S., & Katz, S.J. (2008). Racial/ethnic differences in adequacy of information and support for women with breast cancer. Cancer, 113, 1058-1067. doi:10.1002/cncr.23660
Johnson, B., Abraham, M., Conway, J., Simmons, L., Edgman-Levitan, S., Sodomka, P., & Ford, D. (2008). Partnering with patients and families to design a patient- and family-centered health care system: Recommendations and promising practices. Retrieved from http://www.ipfcc.org/pdf/PartneringwithPatientsandFamilies.pdf
Kilpatrick, M.G., Kristjanson, L.J., Tataryn, D.J., & Fraser, V.H. (1998). Information needs of husbands of women with breast cancer. Oncology Nursing Forum, 25, 1595-1601.
Lewis, F.M., Cochrane, B.B., Fletcher, K.A., Zahlis, E.H., Shands, M.E., Gralow, J.R., … Schmitz, K. (2008). Helping her heal: A pilot study of an educational counseling intervention for spouses of women with breast cancer. Psycho-Oncology, 17, 131-137. doi:10.1002/pon.1203
Maly, R.C., Umezawa, Y., Leake, B., & Silliman, R.A. (2004). Determinants of participation in treatment decision-making by older breast cancer patients. Breast Cancer Research and Treatment, 85, 201-209.
Maly, R.C., Umezawa, Y., Ratliff, C.T., & Leake, B. (2006). Racial/ethnic group differences in treatment decision making and treatment received among older breast carcinoma patients. Cancer, 106, 957-965.
Marín, G., Sabogal, F., VanOss Marín, B., Otero-Sabogal, F., & Pérez-Stable, E.J. (1987). Development of a short acculturation scale for Hispanics. Hispanic Journal of Behavioral Sciences, 9, 183-205.
Meissner, H.I., Anderson, D.M., & Odenkirchen, J.C. (1990). Meeting information needs of significant others: Use of the Cancer Information Service. Patient Education and Counseling, 15, 171-179.
Moore, R.J., & Butow, P. (2004). Culture and oncology: Impact of context effects. New York, NY: Kluwer Academic.
Mujahid, M.S., Janz, N.K., Hawley, S.T., Griggs, J.J., Hamilton, A.S., & Katz, S.J. (2009). The impact of sociodemographic, treatment, and work support on missed work after breast cancer diagnosis. Breast Cancer Research and Treatment, 119, 213-220.
Northouse, L.L., Katapodi, M.C., Song, L., Zhang, L., & Mood, D.W. (2010). Interventions with family caregivers of cancer patients: Meta-analysis of randomized trials. CA: A Cancer Journal for Clinicians, 60, 317-339. doi:10.3322/caac.20081
Öhlén, J., Balneaves, L.G., Bottorff, J.L., & Brazier, A.S.A. (2006). The influence of significant others in complementary and alternative medicine decisions by cancer patients. Social Science and Medicine, 63, 1625-1636. doi:10.1016/j.socscimed.2006.03.050
Rees, C.E., & Bath, P.A. (2000). Exploring the information flow: Partners of women with breast cancer, patients, and healthcare professionals. Oncology Nursing Forum, 27, 1267-1275.
Sandham, C., & Harcourt, D. (2007). Partner experiences of breast reconstruction post mastectomy. European Journal of Oncology Nursing, 11, 66-73. doi:10.1016/j.ejon.2006.05.004
Shaller, D. (2007). Patient-centered care: What does it take? Washington, DC: The Commonwealth Fund.
Sheehan, J., Sherman, K.A., Lam, T., & Boyages, J. (2007). Association of information satisfaction, psychological distress, and monitoring coping style with post-decision regret following breast reconstruction. Psycho-Oncology, 16, 342-351. doi:10.1002/pon.1067
Stiggelbout, A.M., Jansen, S.J.T., Otten, W., Baas-Thijssen, M.C.M., van Slooten, H., & Van de Velde, C.J.H. (2007). How important is the opinion of significant others to cancer patients' adjuvant chemotherapy decision-making? Supportive Care in Cancer, 15, 319-325. doi:10.1007/s00520-006-0149-z
Surbone, A. (2008). Cultural aspects of communication in cancer care. Supportive Care in Cancer, 16, 235-240.
Word, D., & Perkins, J.R. (1996). Building a Spanish surname list for the 1990's—A new approach to an old problem. Washington, DC: U.S. Census Bureau.