Pasacreta, J.V., Barg, F., Nuamah, I., & McCorkle, R. (2000). Participant characteristics before and 4 months after attendance at a family caregiver cancer education program. Cancer Nursing, 23, 295–303.
DOI Link
Intervention Characteristics/Basic Study Process
The Family Caregiver Cancer Education Program consisted of three group sessions in two-hour blocks as a psychoeducational program for caregivers led by nurse–social worker teams. A panel of 20 multidisciplinary experts in oncology designed the program content.
Topic areas in the program included
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Talking to a loved one’s physician and managing in the healthcare system
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Handling role and family relationship changes
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Care of medical equipment
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Managing symptoms
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Talking to children
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Managing other jobs and responsibilities
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Handling insurance and financial issues
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Dealing with emotional reactions
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Finding and asking for help
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Self-care maintenance.
Sample Characteristics
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The sample (N = 187) included English- or Spanish-speaking caregivers who attended the program and completed baseline and four-month follow-up measures.
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Caregivers provided care to patients with a variety of cancer diagnoses during or after transition points of illness.
Setting
Caregivers of patients with cancer from 18 healthcare agencies in a large northeastern city (results from one site of a larger multisite study)
Study Design
A nonrandomized, well-designed trial design was used, with pretest, post-test, baseline, and four-month postintervention scores completed.
Measurement Instruments/Methods
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Caregiver Reaction Assessment
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Caregiver Demands Scale
Results
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Only the impact of caregiving on household finances (dimension of burden) showed significant improvement from baseline to four months postintervention.
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Significant improvement was found in knowledge and assessment of the caregiver role at four months postintervention.
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A significant gender difference existed: More men withdrew and did not complete the second interview. However, no statistical differences in measured burden were found by gender.
Limitations
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Selection and self-selection bias is a potential limitation in the study.
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Generalizing is difficult because the burden of caregivers who were unable to attend the program may differ from those who did.