Supportive Care

Tracking and Journaling the Cancer Journey

Carol J. Hermansen-Kobulnicky

Mary Anne Purtzer

communication, self-monitoring, symptom management, survivorship, patient/public education
CJON 2014, 18(4), 388-391. DOI: 10.1188/14.CJON.388-391

Clinicians sometimes suggest to patients that they keep track of illness-related issues. Self-monitoring is a helpful term to describe these at-home activities that yield essential information for self-management. The purpose of this article is to create greater awareness of the opportunities (and potential shortcomings) of patient self-monitoring for oncology nursing practice.

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    Baos, V., Ester, F., Castellanos, A., Nocea, G., Caloto, M.T., & Gerth, W.C. (2005). Use of a structured migraine diary improves patient and physician communication about migraine disability and treatment outcomes. International Journal of Clinical Practice, 59, 281-286.
    Brant, J.M., & Wickham, R. (Eds.). (2013). Statement on the scope and standards of oncology nursing practice, generalist and advanced practice. Oncology Nursing Society: Pittsburgh, PA.
    Commission on Cancer. (2012). Cancer program standards 2012, Ensuring patient-centered care. Retrieved from
    de Wit, R., van Dam, F., Hanneman, M., Zandbelt, L., van Buuren, A., van der Heijden, K., … Abu-Saad, H.H. (1999). Evaluation of the use of a pain diary in chronic cancer pain patients at home. Pain, 79, 89-99.
    Fayers, P. (1995). MRC quality of life studies using a daily diary card—Practical lessons learned from cancer trials. Quality of Life Research, 4, 343-352.
    Finnell, D., & Ditz, K.A. (2007). Health diaries for self-monitoring and self-regulation: Applications to individuals with serious mental illness. Issues in Mental Health Nursing, 28, 1293-1307.
    Hermansen-Kobulnicky, C.J. (2009). Symptom monitoring behaviors of rural cancer patients and survivors. Supportive Care in Cancer, 17, 617-626.
    Hermansen-Kobulnicky, C.J., & Purtzer, M.A. (2013). How I kept track of it of course was my business: Cancer patient self-monitoring as self-stylized work. Palliative and Supportive Care, 6, 1-7.
    Hermansen-Kobulnicky, C.J., Wiederholt, J.B., & Chewning, B. (2004). Adverse effect monitoring: Opportunity for patient care and pharmacy practice. Journal of the American Pharmacy Association, 44, 75-88.
    Hoekstra, J., de Vos, R., van Duijn, N.P., Schadé, E., & Bindels, P.J.E. (2006). Using the symptom monitor in a randomized controlled trial: The effect on symptom prevalence and severity. Journal of Pain and Symptom Management, 31, 22-30.
    Marceau, L.D., Link, C., Jamison, R.N., & Carolan, S. (2007). Electronic diaries as a tool to improve pain management: Is there any evidence? Pain Medicine, 8(Suppl. 3), S101-S109.
    Maunsell, E., Allard, P., Dorval, M., & Labbé, J. (2000). A brief pain diary for ambulatory patients with advanced cancer: Acceptability and validity. Cancer, 88, 2387-2397.
    Miller, S.M. (1995). Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease: Implications for cancer screening and management. Cancer, 76, 167-177.
    Myers, T.R. (2002). Improving patient outcomes with tools for asthma self-monitoring. Disease Management and Health Outcomes, 10, 631-642.
    Purtzer, M.A., & Hermansen-Kobulnicky, C.J. (2013). Being a part of treatment: The meaning of self-monitoring for rural cancer patients. Cancer Nursing, 36, 93-103.
    Rossi, M.C.E., Nicolucci, A., Pellegrini, F., Bruttomesso, D., Di Bartolo, P., Marelli, G., … Vespasiani, G. (2009). Interactive diary for diabetes: A useful and easy-to-use new telemedicine system to support the decision-making process in type 1 diabetes. Diabetes Technology and Therapeutics, 11, 19-24.
    Schumacher, K.L., Koresawa, S., West, C., Dodd, M., Paul, S.M., Tripathy, D., … Miaskowski, C. (2002). The usefulness of a daily pain management diary for outpatients with cancer-related pain. Oncology Nursing Forum, 29, 1304-1313. doi:10.1188/02.ONF.1304-1313
    Tucci, R.A., & Bartels, K.L. (1998). Patient use of the symptom reporting tool. Clinical Journal of Oncology Nursing, 2, 97-99.
    Wilde, M.H., & Garvin, S.A. (2007). Concept analysis of self-monitoring. Journal of Advanced Nursing, 57, 339-350.